Most people know at least one person affected by M.E. (Myalgic Encephalomyelitis, also diagnosed as Chronic Fatigue Syndrome). The condition is more common than multiple sclerosis or parkinson’s disease, and can be equally disabling. Yet M.E. remains poorly understood. In the absence of treatment options or specialist support, people with M.E. and those who care for them have to become highly self-reliant. Through the Living and Learning project, Action for M.E. has tapped into the collective wisdom and learning of people with M.E. and carers to produce a new person-centred Guide to living with M.E.
This launch event for the new Guide will be held from 7-9pm with guest speaker Stuart Murdoch (musician, writer & filmmaker) and will feature storytelling performances by participants in the Living and Learning project and family members. These will be followed by an interactive Q&A session chaired by Blythe Robertson (Scottish Government) and including healthcare professionals. The evening will end with a Reception (wine, tea & coffee will be served) providing the opportunity to talk to participants and share experiences. There is no charge to attend the evening event and reception.
We are also holding an afternoon Story-Sharing Workshop from 2-4.30pm. Participants will share their M.E. self-management experience and the workshop is open to anyone wanting to know more about managing this illness or to share your story. A charge applies to the workshop, details below.
Both the evening event and workshop will be held at the Scottish Storytelling Centre in Edinburgh (43-45 High Street, EH1 1SR), on Wednesday 23rd March 2016
To register for the evening event or workshop call 0131 556 9579 (open 10am-6pm Mon- Sat) or book online here: (Nb. a £1 fee applies to online and phone bookings)
Tickets can also be booked in person at the Storytelling Centre Box office.
Places at both the workshop and evening event are limited so early booking is advisable to avoid disappointment. We look forward to seeing you
If you have any questions about the workshop please contact Katrina Allen, Project Co-ordinator Scotland, Action for M.E